This week Julia has contracted yellow jaundice and we find it’s another of the little treats pancreatic cancer comes with. On top of that she’s suffered some distress with her digestion that’s had her going to the toilet as a matter of urgency. It really gets her down and at times like this she can’t travel far in case she needs the loo. Seeing herself in the mirror she says it’s like she lost a battle with a bad fake tan bottle.
We saw the oncologist on Thursday and I’m sure he was disappointed that there were just three of us there. His fan club weren’t able to make it because of work. He explained that the tummy problem was exacerbated by the jaundice and was to be expected, but to Julia’s dismay he also pointed out her weight hasn’t increased and she needs to start trying to eat FOUR times a day and taking the tablets with the digestive enzyme. During this next week he’ll arrange for her to be admitted for minor surgery to place a stent in her bile duct to relieve the jaundice.
All of this concentrated my mind on the problem of Pennant Park. We really do need to try and get the arena enclosed and a hoist fitted. Once done they can apply for RDA (Riding for the Disabed Association) accreditation and Julia will only have a small distance to travel while she still can, but the place can bring pleasure to untold numbers of disabled people as well.Maybe they’ll be able to train riders for the next Paralympics in 2016. Since there are so few RDA stables in North Wales it will be ideal for riders to get here. It’s going to cost around £20,000.00 but a start has been mad with the first £60.00 given on Friday. I’ve now written to some of the local Supermarkets looking for sponsorship and designed a few small posters to go up at the stables and in a few factories and shops locally.It was lucky that a piece I wrote for the local paper was taken up and Julia was photographed last week. She found it quite a shock to walk into a store and see her picture plastered all round a news stand. From that came a request for a radio interview which she did last Wednesday though we don’t know when it will be aired yet.
I don’t know how long I have Julia for but I’m determined to make every moment count for her in bringing her ‘bucket list’ to fruition. Any bright ideas welcomed. Her Number 1 was to see our daughter married which takes place in September, and her 2nd was to take part in a dressage competition which she has…and Won! A new RDA closer to home is her third and the hardest. I don’t want to be defeated.
Most annoyed today as we had to go to hospital for an ultrasound scan to see if Ju is suitable for the stent. Why make us believe it was the next step if there may be obstacles in the way. And what happens IF she isn’t suitable? She becomes Marj Simpson? Monday is a Bank holiday so the earliest we can hear anything is Tuesday. Another long weekend.