Yesterday Tuesday 6th November was our latest visit to see Dr.G whom the girls refer to as Dr.McSexy or variations on the theme. The appt was changed to a Tuesday and was later in the day than usual which had it’s good points and it’s bad. The good points- Ju was uncomfortable and in pain and was able to describe the feelings to him directly. The Bad Points- Ju was uncomfortable and in pain.
Attending yesterday were my daughter and her new husband who took us for lunch on the way after which we stopped and had coffee at garden centre where Yvonne and Julia were able to drool over the beautiful ( and very expensive ) Christmas decorations. When we arrived one of my nieces was waiting for us. I have to say that the whole family has been marvelous about Julia’s illness, either wanting to be kept informed or actually attending the appointments. My niece Karen rarely misses any though whether it’s for Ju or not or to ogle the oncologist remains to be seen. At least my daughter wasn’t going to be saying “Phwar” with her husband in such close proximity.
While we waited to be called in I found myself remembering last month’s argument because I wanted to get a more up to date picture. I can understand the point of view of those in opposition but as I spend all my time with Julia, knowing how things stand would give my brain facts to work on and I’d know how far to push and /or encourage Ju in various things. Eating, sleeping and going out. Anyway Ju’s name was called and I suddenly found myself not wanting to go in with them. Ju had promised me she’d be honest in telling him how she felt rather than the automatic “Fine Thanks” when asked how she is. Everyone went in while I the coward dashed to the loo to settle my now churning stomach.
I came out and decided a cigarette might be a good idea to calm me while they were all inside. I just finished it in time to see them all trooping out. Dr.G had asked Ju if the MacMillan nurse had been in touch to which we were able to answer no. We know he’d requested it a month ago. He left the room. Reports say that after a short absence Karen was heard to say, ” Boring without Dr McHottie isn’t it”. He’s also checked why the pain management clinic hadn’t yet responded with an appointment and chase it up. We are to give it to the end of this week before reporting back if there has been no action.
I sleep for roughly four hours a night. In recent months Ju has been going to bed for comfort at about 6pm then watching TV till about 1 am before sleeping. Then I have to rouse her at 8am to deal with the pets ( a playtime they all look forward to with her). On a Friday it’s usually 6 am for shopping. He asked about the pain and about her sleeping before prescribing a new medication which helps with sleep and pain. Last night I went in at 10.30 and she was spark out until I woke her at 8 am today. She was also much more comfortable and we were able to go out for coffee this morning. I think the medication also plays tricks on memory since when time to pay came she remembered she’s left her bag in the car. It’s funny, but this particular medication has been working for months before it was prescribed.
Her weight was the last subject for discussion. Ju is happy that she hasn’t lost any weight in the last month whereas I’m unhappy that she hasn’t gained any despite my hard work. She’s shrunk from a size 14 to a size 8 which is ridiculous. Anyway Dr McBrownEyes has doubled the dose of appetite increasers and suggested ( with some force) that Ju tries grazing continuously throughout the day. This mornings expedition that led to coffee was to a supermarket to find lots of things which she likes the taste of so she’ll be encouraged to eat. The fridge is now full of yoghurts and rice puddings with a large packet of milk chocolate digestives- for the sake of balance I made sure we got a large packet of dark chocolate digestives too.
So now it’s back to the drawing board. No scan means we ( I ) don’t know how things stand but things are going to be great if the sleeping pills/pain relief continue to work and give her pain free nights. They will be great if we can have a lot of much more comfortable days too. Things will be magnificent if when we see Dr McDon’t it make your Brown EyesBlue, I can report that Ju’s memory has improved and she remembers her purse when it’s her turn to pay. I need her help to choose Christmas presents so she has to buck up. I’m almost done but my brother in law is proving difficult and Yvonne is giving me no idea this year apart from a coat for her birthday. I wanted her to take it now since she was shivering in our arctic blasts of yesterday , but no, she said blue suits her.
Thanks every one for letting me blow off steam like this and indulging me. I love my wife dearly ( and I mean expensively)and there are times I don’t know which way to turn. Am I doing the right thing? Who do I talk to? What can I do next? Talking to you all helps me considerably and I do appreciate those who follow the blog and comment.