Sunday 14th June 2015
Some of you may think it strange that I claim to be ill and yet still went out on Sunday.We went because it was a commitment and because I was pretty sure that where we’d chosen to go did not mean a lot of walking. That was a good thing from the point of view of the bellows.
Let me first say , just to shock you, that Mike was up before me this morning.The night for me had been disturbed with coughing and it appears no less so for him. He was worried enough to want to cancel the day but I wanted to go. When I finally managed to get dressed we set off as there was a detour for Mike to get some fish food he needed. From there we went over the tops and arrived at Betws y Coed about 11.45 am. We were meeting Muriel and John at about 1.00 pm so we had time to find somewhere suitable to eat that wouldn’t overface me and my lack of appetite. We found that in the Spinnaker they did a variety of meals, none too big. We started with drinks though so I could take my pre-foodie tablet.
The meal was small enough to be enjoyable but enough to warrant the after food tabs, which I took with a second cup of tea. After lunch Mike texted MuJo to let them know we were there and ready to meet whenever they were. They were still eating their carvery in the Waterloo. But we met at 1.00 pm when they found somewhere to park. There’s a small but delightful row of shops down by the station where we met. We had a small walk and look round a few of them before going for a drink and a cake at another little cafe. I don’t know the name but they do a huge amount of coffee which is free trade, and they send money to protect the gorilla, and other endangered animals.You can actually find yourself having a drink (or eat) next to a full size model of a gorilla.Even the short amount of walking had taken it’s toll on me and I was struggling to breath so we just spent time outside afterwards sitting down. Very soon though it was necessary to say goodbye and for Mike to take me home. In the car I nodded for most of the journey and at home that didn’t change either. When I eventually came to for a few minutes at just gone 6.00 pm Mike had left to go home. I was sorry not to have said goodbye and offered my thanks for the day. I tried going to bed but came back and found my chair in the lounge where I was more upright was much better.As expected it was a very disturbed night in between the constant coughing and struggles for breath.
Sleep wasn’t constant but it was 7.00 am before I got up to take my morning meds. For the second day on the run I couldn’t concentrate more than on breathing. It’s trying to get air out of a chest that has an iron ring round it so it can’t expand. The coughing is so difficult as the phlegm seems reluctant to come out and the force of the coughing hurts the stomach muscles. With that, there was no way I could try writing cheery messages to people. Yvonne was worried and rang the doctors to leave a message about getting some new antibiotics or getting a visit. She tried a couple of times during the day but the doctor hadn’t managed to reach the message. Silly but true. I slept on and off all day which was a bit of a blessing.I was up from 2.00 am to 4.00 am watching a film though before sleep came again.
It was 7.00 am again before I got to my meds. The coughing was worse if anything at first though it settled a bit later. I can still feel and hear the rumbling in my chest and throat though. Yvonne tried the doctor’s early but still there has been no response though apparently my own doctor is in today so maybe there will be something done by lunchtime. Yvonne will have to phone again. It’s silly really that they’re taking a chance on this turning into pneumonia before they actually do anything and if that’s the case they’ll want hospital- though I won’t. It’s father’s day on Sunday and a family gathering I don’t want to miss.
I still struggle to concentrate so there won’t be any mail addressed again today. Yvonne had to phone again after lunchtime. Doc had read note but didn’t want to issue antibiotics without having seen me, which she says has been a while. Fair enough, but she’s not prepared to see me today despite my condition. She made me an appointment for 10.00 am tomorrow….at the surgery. I have bronchitis and am struggling to breathe but she expects me to do some walking and then given my other problems walk into a crowd of strangers;. Yvonne said no, it’s a home visit needed so she now has to phone again in the morning to see if the doctor can do a home visit? And if not does that mean another day without drugs? Do I just wait until I’m admitted with pneumomia perhaps.
Just so you’re not going to be too deprived.
The story gets stranger from now. Yvonne duly phoned yet again this morning and was told the doctor would do a HOME VISIT. By now I was becoming increasingly desperate. Knowing the doctor’s times I was ready for her at 1.35 pm. I even went to open the door for her and indicted to go through to the lounge. Before we’d even reached there she said “So your leg is no better then?” It sort of flummoxed me so before I’d reached the lounge I’d responded ” It’s not my leg that’s the problem, it’s my chest.” “Oh my message was about your leg.” And I couldn’t help but think I supposed that’s why she’d thought I could get to the surgery and why she’d left the visit till today. In a way I could have laughed because as my doctor she’s supposed to remember the problem I’d have getting to the surgery alone and that had it been my leg, she should know what at a mess it was when she saw me about 6 weeks ago and there are always complication possible with blood clots which can be life threatening. So to my mind she couldn’t know what to expect and shouldn’t have been annoyed at Yvonne saying I couldn’t get to the surgery even though she was saying it for totally different reasons.
Anyway, we reached the lounge which had been aired and sprayed and there had been no smoking done there for a few days so it shouldn’t have been offensive to her, and I believe she would say so as she has before. She took my BP , oxygen levels and listened to my chest. I have no idea what the BP was, but I believe I saw 59% for the oxygen levels which she said were OK. She didn’t like the sound of the chest though and immediately prescribed steroids and some decent antibiotics. said I’d arrange for the drugs to be collected as it would waste time taking the prescription back to the surgery and issuing it to the chemist who may already have collected today. Before she left I did actually show her my ankle as she didn’t seem interested in how it was. It is actually getting better all; the time but it’s rough to look at. She was happy with the progress and said the usual “Keep applying the cream.” She left.
I have to confess I’m a bit unhappy about the way the week has gone. Any confusion could have been cleared up Monday if anyone had taken the time to read the note. No chest in this condition should be left for long. If my doc was away on Monday, surely the notes left could be read before surgery to see if they’re important and not left till lunchtime. I think a Tuesday visit should have been on the cards. Still she’s been now and having no alternative I had to go out to the chemist myself. The journey took me a very long time and I was so out of breath I couldn’t speak when I got there. I was close to collapse when I got back in. I took the first antibiotic and made a quick meal to take the steroids with. I slept. That’s how Dil found me when he came in. I enjoy my Wednesday too much to cancel and my brother is fantastic company. The Yahtzee was a draw at three games each. It was my turn to win Trivia and I also won the two cribbage games. I just didn’t have the energy for any victory dances. Before he left Dil showed me a trick with my computer which would not load up after having gone to sleep during the day. I spent till 1.00 am trying to clear any post which didn’t warrant a reply but there were over 400 to check between the two addresses. From 1.00 – 2.00 am I watched some Forensic detectives catch the guilty parties after some really hard work and from 2.00 – 2.30 am I watched two men going out to buy the contents of sealed containers being sold off to pay delinquent storage fees. The best one I’ve seen so far.
6.45 am this morning found me propped up in bed and really suffering.I struggled to get to the kitchen and a coughing session almost had me fainting. I took a pre-foodie with some milk then took my sprays and my normal tabs before eventually downing a bowl of cornflakes which I had 6 steroids with. I then made a coffee and had my two post food tabs and my antibiotic. I needed to sit down. Once I had enough breath I made my way to the bedroom and turned the computer on. It came up no problem. First job of the day was to head for the bank to see whether the DWP have corrected my pension money and repaid what they owe. No prizes for guessing the answer to that one. The only thing I was glad of is that they hadn’t started recovery on the supposed debt. So despite the fact I’m £30 a week down still, it’s not as bad as it could have been. It is of course a disappointment to know that they haven’t tried to correct their mistake despite having all the proof they need weeks ago and it’s 2 weeks now since a request for a redetermination. It’s not that I don’t have sympathy for the pressure they’re under as they often have a huge workload, but as people they must realise the problems they cause others when their mistake can reduce an already low income by such an amount weekly.
At 9.45 am I was a little more composed and had got dressed to go to Pauline’s. It was another slow journey and the two steps into the shop all but did for me. I got what I needed, bought my lottery tickets and came home again. I sat in front of the TV until 1.00 pm. Just so you don’t think my life has changed too much,I nodded off. A little later I got a text from my great pal Lis asking if I was in. I checked and I was so she said she’d be there in 5 minutes. She was almost right, it was 5 minutes and 18 secs but I forgave her. She was surprised to find me such a mess which I mention just to prove that I don’t actually moan, moan, moan all the time. We chatted about this and that ( but certainly not the other) until it was time for her to go when she impressed on me the importance of letting her know when I’m bad so she can either take me places or do shopping for me. Just before she left there was a text to say Mike was on his way. 7.15 pm I reckon. I was out by a bigger margin than Lis but still not bad. It was great to see him again. I stayed up with him till midnight and then was allowed my half hour on the computer. Some times there are messages that have to be replied to.
Up at 4.00 am coughing badly. How the heck I didn’t wake Mike I’ll never know. It lasted over an hour and I was exhausted by the end of it. I nipped to the loo, came back and booted up, had a sneaky half hour on the computer then went through to take my meds. Once all the normal were done, I had a pre-foodie then instead of my ciggie for timing, went straight into doing my drugs for the next week in the trays. As soon as that was done I was able to eat some cornflakes , take my two post foodies, the 6 steroids and my antibiotic. What a pudding that was.
I sat in the lounge trying to stifle the coughs but still trying to breathe. Mike says I have it the wrong way round. Regardless of his unkindness I still waited until 9.00 am before waking him with a coffee. He got up fairly quickly, I was amazed, but he says he was on the point of getting up anyway. I managed to prompt him into getting dressed during the adverts in Frazier so it wasn’t as difficult to get him off to his fathers when it was over. I tried to relax all day but that’s not the easiest of things as I’m sure many asthmatics can attest to.You can’t relax when you’re straining to breathe. There were a couple of times when I fell asleep but I think I needed it. Mike let me know about 5.00 pm that he was on his way back but traffic isn’t predictable. After my quiz and the cancellation of my second one due to an over-run in tennis I took a slow and much needed shower. I was drained when I’d finished but my finish coincided with the arrival back of Mike so once he’d got a coffee we settled into watching a comedy on TV. He made himself something to eat and we kept company until around midnight.
A very poor night. I was in the lounge from 2.30 am struggling. Mike said he went through to the loo about 3.00 am and was really worried but he thought I was asleep and didn’t want to disturb me. I’d so hoped for something of an improvement by now. Mike was 1 A and 1 C at 6.30 am. A shame as I was hoping to have to make a second call because he got away yesterday. I saw to the bins while he had his drink and then we had words about me going out. I was going but promised to use an electric wheelchair or as Mike favoured, a push wheelchair that I could attach a front basket too. I confess I was worried about the state of his health if he had to push me round the shop, but that was the choice he made. We chose Ju’s flowers and I was beginning to think I might be able to present them in person. We got through quite quickly and went for a coffee. It must have looked comical in the cafe with us both sounding like we’d run a marathon and me coughing like I’d got the bubonic plague. Sorry about your trade McD’s. Going to Flint was unavoidable as I still needed a couple of things. But it didn’t take long before I was settled in Temptations with a coffee. As Flint is on the way home it wasn’t a detour.
We were home early and even carrying a couple of bags from the car to the door floored me so I had to sit down. I didn’t move from the house again. I didn’t move from the lounge again never mind the house. Mike went for a takeaway at about 9.00 pm as we needed to eat but I couldn’t even finish an omelette. 11.00 pm say me coming through a bit early to deal with this. I wasn’t sure whether I should send it such a catalogue of Pity Me as it sounds but I can see it’s likely to still be a difficult week next week and so very few emails will be dealt with again. I don’t want you to think I don’t care. I do.
My daughter had a camera phone welded to her hand so here’s a couple of the latest for you.
Have a wonderful new week all.